How to Live when you're dying
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watching my gorgeous - selfless husband Dave slowly lose his battle to the cruel disease that is Cystic Fibrosis i just want to give him the world he so much deserves, he has always gone through life never grumbling or asking for anything - and he wouldn't dream of it now. Like most he has dreams, he has a bucket list and he probably doesn't have the time. In the last few months ive seen him fight to stay well with every ounce of strength he has, but riddled with infection his lungs are failing him 18% is what hes working on - so in 4 months hes gone from his poor but stable 32% to 26% to 18% hes now been diagnosed as having CF related diabetes and were currently trying to find a hospital that might consider him to go on the transplant list. But the wonderful concoction of bugs hes got in there are proving to be a blacklist for fitting the critera.
31 and were discussing funeral songs on the 2hr drive back from leeds? Where's the justice. Cystic fibrosis is cruel - your born with it and you spend your entire life fighting it. Your whole body constantly hammered by physio - Nebulisers - anti biotics and Iv anti biotics. You dont get days of rest or time off its constant.
I desperately want to help him tick off his humble bucket list - i wholeheartedly think if there is anyone in this world who deserves it, its him. My unassuming caring soul of a husband. My CF fighter xxx
☆¸.•°*”˜˜”*°•.¸☆ ★★-☆¸.•°*”˜˜”*°•.¸☆
The Bucket List - 31 things for 31yrs
★ = ticked :)
1. Stay in highlands Log Cabin
2. Enjoy a meal at the Fat Duck
3. Attend a Red Carpet Movie Premiere ★★★
4. Take the Kids to Magic Natura ★★★
5. Go wine Tasting in France
6. Watch a Championship Boxing match Ringside
7. Go on a lake Cruise in Lake Como
8. Own a piano ★★★
9. Visit Verdon Gorge ★★★
10. Visit Plitvice in Croatia
11. Do the Zip Wire at Eden Cornwall
12. See town Play Man Utd
13. Do a Skydive (health permitting)
14. Throw a Dart on a map - Travel to where it lands
15. Buy 100 Brollys, hand them out to people caught in the rain (tbc in planning)
16. Go to a Darts Final with mates
17. Take the kids to Disneyland★★★
18. See the Northern Lights
19. Go watch Speedway Racing (tbc in planning)
20. Sleep in a yurt or glamping
21. Go to the Royal Ascot Races
22. Have a Full Spa day ★★★
23. Spend the day with a Cornish Fishman going about his daily job
24. Go wild Camping in the Lakes
25. See Town at the Wembley Final ★ ★★
26. Go to a French Christmas Market
27.Go to Centre Parks ★ ★★
28. See Cirque De Soliel
29. Meet Ronnie O'Sullivan ★ ★★
30. Visit Venice
31. Travel in a campervan (tbc in planning)
☆¸.•°*”˜˜”*°•.¸☆-★ ☆¸.•°*”˜˜”*°•.¸☆-
if anyone can help with any of these please dont hesitate to contact me [email redacted] xxx
To donate to help Dave complete his bucket list
https://www.gofundme.com/husbands-bucket-list
Alternatively to donate to the Cystic Fibrosis Trust to help find a cure
Text 70070 CCFD50 £1/£3/£5 any amount xxx Together let's challenge https://www.justgiving.com/Challengecf
31 and were discussing funeral songs on the 2hr drive back from leeds? Where's the justice. Cystic fibrosis is cruel - your born with it and you spend your entire life fighting it. Your whole body constantly hammered by physio - Nebulisers - anti biotics and Iv anti biotics. You dont get days of rest or time off its constant.
I desperately want to help him tick off his humble bucket list - i wholeheartedly think if there is anyone in this world who deserves it, its him. My unassuming caring soul of a husband. My CF fighter xxx
☆¸.•°*”˜˜”*°•.¸☆ ★★-☆¸.•°*”˜˜”*°•.¸☆
The Bucket List - 31 things for 31yrs
★ = ticked :)
1. Stay in highlands Log Cabin
2. Enjoy a meal at the Fat Duck
3. Attend a Red Carpet Movie Premiere ★★★
4. Take the Kids to Magic Natura ★★★
5. Go wine Tasting in France
6. Watch a Championship Boxing match Ringside
7. Go on a lake Cruise in Lake Como
8. Own a piano ★★★
9. Visit Verdon Gorge ★★★
10. Visit Plitvice in Croatia
11. Do the Zip Wire at Eden Cornwall
12. See town Play Man Utd
13. Do a Skydive (health permitting)
14. Throw a Dart on a map - Travel to where it lands
15. Buy 100 Brollys, hand them out to people caught in the rain (tbc in planning)
16. Go to a Darts Final with mates
17. Take the kids to Disneyland★★★
18. See the Northern Lights
19. Go watch Speedway Racing (tbc in planning)
20. Sleep in a yurt or glamping
21. Go to the Royal Ascot Races
22. Have a Full Spa day ★★★
23. Spend the day with a Cornish Fishman going about his daily job
24. Go wild Camping in the Lakes
25. See Town at the Wembley Final ★ ★★
26. Go to a French Christmas Market
27.Go to Centre Parks ★ ★★
28. See Cirque De Soliel
29. Meet Ronnie O'Sullivan ★ ★★
30. Visit Venice
31. Travel in a campervan (tbc in planning)
☆¸.•°*”˜˜”*°•.¸☆-★ ☆¸.•°*”˜˜”*°•.¸☆-
if anyone can help with any of these please dont hesitate to contact me [email redacted] xxx
To donate to help Dave complete his bucket list
https://www.gofundme.com/husbands-bucket-list
Alternatively to donate to the Cystic Fibrosis Trust to help find a cure
Text 70070 CCFD50 £1/£3/£5 any amount xxx Together let's challenge https://www.justgiving.com/Challengecf
Organizer
Sarah Fisher
Organizer