Lance Twins Medical Expenses
Donation protected
My twins Gavin and Gabe were born at 30 weeks 2 days just 11 short months after our first both Ethan arrived. We were blessed with "Irish Triplets." Our twins developed Twin to Twin Transfusion Syndrome at 16 weeks gestation which required extensive maternal fetal care including repeat amnioreductions and weekly ultrasounds. We were told the boys had a 100% mortality rate unless we tried a new invasive inurtero surgery called Selective Fetoscopic Laser Photocoagulation. We had a 60% success rate to bring both boys home and a 90% success to bring at least one of our babies home. We beat the odds. Gavin and Gabe were born, both, at 3lbs 11oz and 16 in. long. They required a 34 day stay in the NICU, where it was discovered they both had brain injuries called Periventricular Leukomalacia, due to the lack of oxygen supplied to their brains during delivery. The boys were both subsequently diagnosed with Cerebral Palsy and various subsequent diagnos's related to it (vision issues, digestive issues, developmental issues).
Gavin has Spastic Quadriplegic Cerebral Palsy which severely limits his mobilities and abilities physically, mentally he is at appropriate age. He has had a spinal surgery called Selective Dorsal Rhizotomy and Partial Ventral Rhizotomy 10/25/17 which requires a twice daily home PT program as well as traveling almost 50 miles daily for outpatient physical and occupational therapy. He also just had a very extensive open abdominal surgery to fix malrotation of the bowels called a Ladd Procedure, place a gtube, and appendectomy on 11/2/18 with him having to stay in for another inpatient hospital stay of 13+ days so far. This includes mom staying at the hospital with Gavin so childcare is needed, food for mommy here and family at home, and transportation expenses. They doctors or saying we will possibly need to be homebound education shortly for a month, a hospital bed, g tube accessories, and will be total assist for 4 weeks as he cannot engage his abdominal wall.
Gabe has Spastic Diplegic Cerebral Palsy. It only affects his lower extremities and gas global affects such as hearing loss, muscle spasms and pain, and severe constipation. Gabe currently has upcoming serial botox injections in December and will also have the same spinal surgery as Gavin in late summer/fall of 2019 and the same therapy requirements post op.
We are down to a one income family in order to stay at home and provide full time care for our boys. This allows us to provide them with all the physical, occupational, developmental, speech, feeding therapies, visits to the nutritionist, cerebral palsy clinic, neurologist, neurosurgeon, orthpedic surgeon, GI, ENT, fittings for new braces, opthomologist, Botox injections, ect. We are very blessed to have found a way to provide the best care for our boys, but this also means that we cannot purchase all the equipment out of pocket, that insurnace doesn't cover, that would allow our boys to be more comfortable and enjoy life to its fullest, childcare for our other kids in emergency situations, and out of pocket expenses related to medication.
By donating you would be helping the boys reach their highest potentials and live as "normally" as possible.
We are trying to raise funds to assist in the purchase of medication not covered by insurance, supplemental nutrition not covered by insurance, childcare expenses during our current hospital stay for the others at home, respite care/home health services to assist Mom in the care of the twins, transportation expenses to surgery and therapy appointments, inpatient stay related expenses, and equipment to make the world more handicap accessible for our boys.
As many of you know, Gavin and Gabe had surgery on 8/14 and 9/11. The financial burden that has slammed upon us with absorbing the cost of Gavin’s hip brace ($1,200 which we have been able to pay some on thanks to a lovely family friend) because we needed it before Medicaid could approve it and the daily appointments with specialists, routine care, and bi-weekly therapy are taking a lofty toll on our family. The panic has set in and the appointments don’t stop. Gabe can’t even stand unassisted let alone walk yet post op and on top of Gavin being full assist we are struggling.
Today 9/19- PT and the gtube surgeon.
Friday 9/20- home health nurse.
Monday 9/23- personal mobility
Tuesday 9/24- PT/OT
Wednesday 9/25- pediatrician
Thursday 9/26- PT, dietary, and GI
Friday 9/27- the dogs have a vet visit and mama has her check up
Monday 9/30- orthopedic follow up and casting for Gabe’s new braces at CPO
Tuesday 10/1- PT/OT and allergist
Wednesday 10/02- Gavin dermatology
Thursday 10/3- PT/OT
Wednesday 10/4- NEXT APPT FREE DAY
Many of these appointments with ortho, neuro, gi, dietary, dermatology, allergist, therapy- are 2-6 week follow up appointments indefinitely to closely monitor growth, post op recovery, manage symptoms, and they boys have sedated MRI’s coming up in the next couple weeks as well meaning more appointments. It means Tim missed from work from my husband to get other children off the bus, to come to procedures/surgeries to help, travel expenses for the 50-180 miles we drive in a day, every single day, to all of these appointments.
We have a gracious friend trying to organize a fundraiser for us in November (when things maybe, but not likely settle down). Until then we love you all and appreciate any shares, contributions, prayers and love you send our way. We cannot thank you all enough ❤️
WeRockCp’s Facebook Page
We Rock CP’s Instagram





Gavin has Spastic Quadriplegic Cerebral Palsy which severely limits his mobilities and abilities physically, mentally he is at appropriate age. He has had a spinal surgery called Selective Dorsal Rhizotomy and Partial Ventral Rhizotomy 10/25/17 which requires a twice daily home PT program as well as traveling almost 50 miles daily for outpatient physical and occupational therapy. He also just had a very extensive open abdominal surgery to fix malrotation of the bowels called a Ladd Procedure, place a gtube, and appendectomy on 11/2/18 with him having to stay in for another inpatient hospital stay of 13+ days so far. This includes mom staying at the hospital with Gavin so childcare is needed, food for mommy here and family at home, and transportation expenses. They doctors or saying we will possibly need to be homebound education shortly for a month, a hospital bed, g tube accessories, and will be total assist for 4 weeks as he cannot engage his abdominal wall.
Gabe has Spastic Diplegic Cerebral Palsy. It only affects his lower extremities and gas global affects such as hearing loss, muscle spasms and pain, and severe constipation. Gabe currently has upcoming serial botox injections in December and will also have the same spinal surgery as Gavin in late summer/fall of 2019 and the same therapy requirements post op.
We are down to a one income family in order to stay at home and provide full time care for our boys. This allows us to provide them with all the physical, occupational, developmental, speech, feeding therapies, visits to the nutritionist, cerebral palsy clinic, neurologist, neurosurgeon, orthpedic surgeon, GI, ENT, fittings for new braces, opthomologist, Botox injections, ect. We are very blessed to have found a way to provide the best care for our boys, but this also means that we cannot purchase all the equipment out of pocket, that insurnace doesn't cover, that would allow our boys to be more comfortable and enjoy life to its fullest, childcare for our other kids in emergency situations, and out of pocket expenses related to medication.
By donating you would be helping the boys reach their highest potentials and live as "normally" as possible.
We are trying to raise funds to assist in the purchase of medication not covered by insurance, supplemental nutrition not covered by insurance, childcare expenses during our current hospital stay for the others at home, respite care/home health services to assist Mom in the care of the twins, transportation expenses to surgery and therapy appointments, inpatient stay related expenses, and equipment to make the world more handicap accessible for our boys.
As many of you know, Gavin and Gabe had surgery on 8/14 and 9/11. The financial burden that has slammed upon us with absorbing the cost of Gavin’s hip brace ($1,200 which we have been able to pay some on thanks to a lovely family friend) because we needed it before Medicaid could approve it and the daily appointments with specialists, routine care, and bi-weekly therapy are taking a lofty toll on our family. The panic has set in and the appointments don’t stop. Gabe can’t even stand unassisted let alone walk yet post op and on top of Gavin being full assist we are struggling.
Today 9/19- PT and the gtube surgeon.
Friday 9/20- home health nurse.
Monday 9/23- personal mobility
Tuesday 9/24- PT/OT
Wednesday 9/25- pediatrician
Thursday 9/26- PT, dietary, and GI
Friday 9/27- the dogs have a vet visit and mama has her check up
Monday 9/30- orthopedic follow up and casting for Gabe’s new braces at CPO
Tuesday 10/1- PT/OT and allergist
Wednesday 10/02- Gavin dermatology
Thursday 10/3- PT/OT
Wednesday 10/4- NEXT APPT FREE DAY
Many of these appointments with ortho, neuro, gi, dietary, dermatology, allergist, therapy- are 2-6 week follow up appointments indefinitely to closely monitor growth, post op recovery, manage symptoms, and they boys have sedated MRI’s coming up in the next couple weeks as well meaning more appointments. It means Tim missed from work from my husband to get other children off the bus, to come to procedures/surgeries to help, travel expenses for the 50-180 miles we drive in a day, every single day, to all of these appointments.
We have a gracious friend trying to organize a fundraiser for us in November (when things maybe, but not likely settle down). Until then we love you all and appreciate any shares, contributions, prayers and love you send our way. We cannot thank you all enough ❤️
WeRockCp’s Facebook Page
We Rock CP’s Instagram





Organizer
Jessica Lance
Organizer
Auburn, IL