Love for little Luke

My beautiful baby was diagnosed with a potientally life ending syndrome. He has a small pons and cerebellum in his brain. He is one in 70 diagnosed and not too much is known except many kids don't live too long. We found out today just how expensive this is going to be. I won't be able to work because therapy will be pretty much daily. Todd missed a week of work and we are trying to make everything work. But medical bills are already beginning to pile up. He needs a suction machine and potientally other medical equipment for the house. We want to give Luke the best time this world has to offer so we would like to give him experiences. Like kalahri and Disney. I hate having to ask for a hand out but my little boy deserves the best. Any help would be appreciated. The money will be used to purchase medical equipment pay for second opinions and help us give Luke the best life he can.  We are from Orange County NY and I am Luke's mommy.