Nevaeh's Detour

Hello my name is Nevaeh and I have a rare condition where I am missing 2 of my main veins that pump blood to my heart. I am taking this time to raise awareness about my rare condition and also to raise money for the things that my insurance won't cover.
Because this condition is so rare there is no name for it. No name means no coverage from my insurance!If I do not recieve this surgery my leg will eventually have to be AMPUTATED....so I am needing money for things such as: 
Copays
Deductables
My actual surgery or what is not covered
Flights to different hospitals in different cities
Hotels in the different cities for my family 
Gas for our cars
A new bed to keep my blood flowing while I sleep
Machines that the dr's recommend
And new compression hose for my legs
These things are all vital to my survival. Any money that I raise above what I need will go to the research of finding a cure for other people out there that may have this same rare condition. Thank you for your support and love throughout this process! Together we can find a Detour that works...