Medical Needs for the Greene Family
Donation protected
Many of you know, that the Greenes are excited to be expecting their third little boy! They are already in love with little Daniel Patrick Greene, who is currently growing safely within Kristin's womb. The past 6-8 weeks have been stressful on the Greene's, as Kristin and Kyle found at the news that Daniel has a diagnosis of bladder exstrophy. This is a rare defect that happens 1 in 50,000 births. Bladder exstrophy is when the baby’s bladder forms outside of the body. This effects the entire bladder, urinary, and reproductive system. Surgery is to be expected as soon as his body is ready after his birth. The full affects of the situation on this family will be far reaching and life long. It will include lifelong medical care for Daniel from specialists, multiple surgeries, long term medical supplies, trips to a specailist out of state (Baltimore or Philadelphia), as well as travel, food, and lodging expenses for Daniels birth, NICU stay, and initial surgery out of state (which means Kyle will be missing significant amounts of work).
First and foremost the Greene's are concerned with Daniel's well being. They also have come to realize that they need help paying for all the expenses that are adding up quickly. It is overwhelming to think about how they will continue to care for Daniel, Jacob, and Asher's needs logistically. Here is a list of expenses that the Greenes have thought of, that they will face due to Daniels complex medical diagnosis:
Out of pocket max: 8k
Delivery: 1.5k
Travel/housing: 3k
Lost wages: 4.4k
These are approximates and there are likely more expenses that will come up.
Also This is just for first surgery. There will be at least 2 more surgeries, possibly more. There will be ongoing medical expenses as this is a chronic diagnosis with lifelong follow up.
The Greene's have graciously stated that if there are leftover funds they will donate it to a charity for bladder estrophy or to their church. I don't believe the will have leftover funds, as the expenses caused by the diagnosis will never end.
On a personal level, I must say what an encouragement that this family's attitude has been to me. Even with all that they are going through, Kristin reminded me that we are weak, and cannot be strong. God is strong for us and His glory shine's in our weakness. God did not allow this diagnosis to touch this family due to their strength, because who can be strong in the face of a devastating diagnosis? Rather, God knows it will bring Him glory. 2 Corinthians 12:8-9: "Three times I pleaded with the Lord about this, that it should leave me. But he said to me, 'My grace is sufficient for you, for my power is made perfect in weakness. Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me."
In order to give a glimpse of the life of the Greene's lately, I will share this recent text that Kristin sent to me:
"Calling docs today, never thought phone calls would be so emotionally draining.
Please constantly be praying for us and baby. We are balancing having faith for miracles while also preparing for the worst, and it’s looking more and more like we will deliver up north (philly or Baltimore). I am making calls to set up consults with these doctors PRAYERFULLY by phone, an in person consult would be very hard. Please pray we can consult soon so we can get answers soon, and start planning details if this is what will come to pass. THIS IS
SO RARE. THIS IS SO HARD. I haven’t been able to find any light at the end of the tunnel but saw a spark today when I called and spoke with dr Canning’s receptionist (children’s hospital of Philadelphia) I burst into tears when she said dr canning is the best and this is his specialty and so many of his patients turn out to where you’d never know. So I’m praying for both- miracles that baby Daniel’s body would be minimally deformed and have maximum to work with to repair, as well as for excellent surgery to get miraculous healing results. Please pray. Thank you."
Let us celebrate the conception and upcoming birth of Daniel Patrick Greene, and grieve all that is lost with the news of a baby that is not healthy, as the Greene's had hoped. This family needs so many things. Right now the best way to show support is with CONSTANT PRAYER and by donating what you can, so that Kristin, Kyle, Jacob, Asher, and new baby Daniel can have their needs met, be blessed, and know that they are not alone.
First and foremost the Greene's are concerned with Daniel's well being. They also have come to realize that they need help paying for all the expenses that are adding up quickly. It is overwhelming to think about how they will continue to care for Daniel, Jacob, and Asher's needs logistically. Here is a list of expenses that the Greenes have thought of, that they will face due to Daniels complex medical diagnosis:
Out of pocket max: 8k
Delivery: 1.5k
Travel/housing: 3k
Lost wages: 4.4k
These are approximates and there are likely more expenses that will come up.
Also This is just for first surgery. There will be at least 2 more surgeries, possibly more. There will be ongoing medical expenses as this is a chronic diagnosis with lifelong follow up.
The Greene's have graciously stated that if there are leftover funds they will donate it to a charity for bladder estrophy or to their church. I don't believe the will have leftover funds, as the expenses caused by the diagnosis will never end.
On a personal level, I must say what an encouragement that this family's attitude has been to me. Even with all that they are going through, Kristin reminded me that we are weak, and cannot be strong. God is strong for us and His glory shine's in our weakness. God did not allow this diagnosis to touch this family due to their strength, because who can be strong in the face of a devastating diagnosis? Rather, God knows it will bring Him glory. 2 Corinthians 12:8-9: "Three times I pleaded with the Lord about this, that it should leave me. But he said to me, 'My grace is sufficient for you, for my power is made perfect in weakness. Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me."
In order to give a glimpse of the life of the Greene's lately, I will share this recent text that Kristin sent to me:
"Calling docs today, never thought phone calls would be so emotionally draining.
Please constantly be praying for us and baby. We are balancing having faith for miracles while also preparing for the worst, and it’s looking more and more like we will deliver up north (philly or Baltimore). I am making calls to set up consults with these doctors PRAYERFULLY by phone, an in person consult would be very hard. Please pray we can consult soon so we can get answers soon, and start planning details if this is what will come to pass. THIS IS
SO RARE. THIS IS SO HARD. I haven’t been able to find any light at the end of the tunnel but saw a spark today when I called and spoke with dr Canning’s receptionist (children’s hospital of Philadelphia) I burst into tears when she said dr canning is the best and this is his specialty and so many of his patients turn out to where you’d never know. So I’m praying for both- miracles that baby Daniel’s body would be minimally deformed and have maximum to work with to repair, as well as for excellent surgery to get miraculous healing results. Please pray. Thank you."
Let us celebrate the conception and upcoming birth of Daniel Patrick Greene, and grieve all that is lost with the news of a baby that is not healthy, as the Greene's had hoped. This family needs so many things. Right now the best way to show support is with CONSTANT PRAYER and by donating what you can, so that Kristin, Kyle, Jacob, Asher, and new baby Daniel can have their needs met, be blessed, and know that they are not alone.
Organizer
Kristin Greene
Organizer
Land O' Lakes, FL