Help Lil jaxson today please
It's a tough one. Jaxson is yet to get a diagnosis. He was born at 35 weeks because I had pre-eclampsia. He stopped breathing in recovery and once resuscitated he was taken to the ICU. I only got to meet my boy the next day. We was in hospital 2 weeks as jaxson had jaundice and required photo therapy. So I only got to hold my boy proper out his incubator two weeks after birth. Jaxson began to loose weight and fell from his birth weight at 5lb 7oz to just 5lb. At 1 month we took Jaxson to four different health professionals who said, he will grow out of it, he has a virus and it's baby asthma. Jaxson was chocking on ever meal we gave him. He would be histerical every bottle time because he was chocking and struggling to breath. At 3 months Jaxson went blue and rushed to hospital. He was floppy in posture and struggling to breath. We was rushed to alder hey and Jaxson had and operation on his throat to take away excess skin that was sucking into his air ways when he was trying to breath. This operation failed and he had to have it repeated. This time the surgeon had to take so much skin from his troat that now everything Jaxson eats goes into his lungs. Jaxson was fitted with a peg feed in August at which time he caught two viruses in hospital and required oxygen to breath. Jaxson is undergoing genetic tests and neurological tests to try find a diagnosis. He does not support himself and is just floppy. He has a low immune system and is constantly in hospital as he can't fight infection. (We are in hospital now). Jaxson has spent more of his time in hospital or in the present early of hospital workers. We attend 4 hospitals and have 8 different nurses that come to the house. We are having to move house due to our current house being inadequate for Jaxsons needs. The stairs are too steep. The house has no garden and goes on to a public pathway so a ramp can not be put in place. Ophthalmologist are unsure if Jaxson can see. He has glasses to try strengthen his eyes . He can see flashing lights but unsure of anything else. He has plagiocephaly and tortacolis and so has his head turned to the left side all of the time. Jaxson is at high risk of SIDS and so me and his dad do not sleep haha frightens incase he stops breathing. I am having to finish work to care for jaxson. I have worked for the NHS for nearly 10 years and odviously don't want to leave work but jaxson will always come first . We have a care through my work like a company car which is going to be taken off us due to me leaving work, but this is our transport to all of Jaxsons appointments! Jaxson is 1 next month on 10th march. Let me send you some pictures he's a handsome chap x
Plz Plz help this lovely little boy get the money he needs for him to be able to get a special helmet and his parents to buy a car to get this handsome little man to and from the hospital for his appointment 's n stays