
Help Jinwei fight ALS disease
Donation protected
My name is Jinwei Wu, male, born 12/2/1970. I started having asthma issue since 2016 and have been using an inhaler called BREO for treatment. While my asthma got better I started to experience difficulty in speaking, which I thought was a side effect caused by steroid from BREO. Later on, however, I felt weakness in my neck, right hand and right leg, along with obvious weight loss. After taking a few exams including EMG, MRI, etc, in May 2018 I was diagnosed Amyotrophic Lateral Sclerosis (ALS), a specific disease which causes the death of neurons controlling voluntary muscles - the same disease Stephen Hawking had. Due to difficulty moving around, I started working from home since June this year. Eventually, with the progression of the disease, I had to leave my job and went on disability leave since the end of September.
Currently I am under treatment at Johns Hopkins ALS Clinic. The increasing medical costs has become a financial burden that is too much for me and my family. Other costs also fell on us including hiring people who can take care of me full-time, as the progressive muscle weakness all over my body has forced me on feeding tube and wheelchair.
As a Christian, I am using everyday God gives me to study his words, sharing my thoughts and feelings from God with my brothers and sisters, and entirely devoting myself to the Lord for his use.
Currently I am under treatment at Johns Hopkins ALS Clinic. The increasing medical costs has become a financial burden that is too much for me and my family. Other costs also fell on us including hiring people who can take care of me full-time, as the progressive muscle weakness all over my body has forced me on feeding tube and wheelchair.
As a Christian, I am using everyday God gives me to study his words, sharing my thoughts and feelings from God with my brothers and sisters, and entirely devoting myself to the Lord for his use.
Organizer
Jinwei Wu
Organizer
Gaithersburg, MD