Ride for Roz
Donation protected
Roz was born a beautiful and healthy little girl in 2010, but it was shortly after her 2nd birthday that she suddenly began to have seizures, intense seizures. Over the next year and a half, her seizures became increasingly debilitating. Roz failed 5 different seizure medications and went through rigorous epilepsy surgery testing.
On February 5, 2014, a neurosurgeon placed 120 electrodes directly on Roz’s brain. We soon found out that her entire right hemisphere was constantly seizing and we would need to disconnect it. A week later, she underwent a 9-hour functional Hemispherectomy. When she awoke from her surgery it was without the use of her entire left side of her body, she was also now blind in the left half of both her eyes. Roz remained in the hospital for 6 weeks and went through extensive in-patient therapy twice a day.
It was then that we were told that Roz has an extremely rare condition called Rasmussen Encephalitis and she is 1 of only 500 worldwide ever diagnosed with this devastating and very rare disease.
Today, Roz is one amazing, strong and determined, 8-year-old little girl, but she still has many struggles. She has surgery induced Cerebral Palsy /Hemiplegia, Hemianopsia, Central and Obstructive Apnea, GERD, bowel issues and some learning delays.
We are in need of a reliable vehicle for Roz’s medical trips throughout the year. Our current SUV has over 160,000 miles, a nonworking gas gage, constant engine light on, failing heat, and most of all, it does not allow for Roz to be independent.
Roz goes to therapy weekly which, is a two-hour round trip so that she can get the best therapy for her condition. In addition, we travel at least 3 times a year to Cincinnati Children’s Hospital, which is 3 hours round trip. These trips are just for her routine appointments and don’t include any special appointments or tests.
Roz and our family would love to get a Honda Odyssey van so we can get her safely to her numerous appointments. This van provides safety features such as rear seat viewing cameras so we can keep an eye on her for any signs of distress while we are driving. It also provides room for her medical stroller that comes with us anywhere we go and lastly we can add adaptive handles and steps that allow Roz to get in and out easily and independently.
Chive Charities has helped us keep Roz safe at home by providing us with much-needed medically related equipment and when they asked if there was anything else their community could assist us with, we humbly requested help purchasing this $30,000 vehicle. This van would take away one more worry for us and help us provide comfort, safety, and independence for Roz.
Thank you, everyone, for your generous support of Roz and our family!
On February 5, 2014, a neurosurgeon placed 120 electrodes directly on Roz’s brain. We soon found out that her entire right hemisphere was constantly seizing and we would need to disconnect it. A week later, she underwent a 9-hour functional Hemispherectomy. When she awoke from her surgery it was without the use of her entire left side of her body, she was also now blind in the left half of both her eyes. Roz remained in the hospital for 6 weeks and went through extensive in-patient therapy twice a day.
It was then that we were told that Roz has an extremely rare condition called Rasmussen Encephalitis and she is 1 of only 500 worldwide ever diagnosed with this devastating and very rare disease.
Today, Roz is one amazing, strong and determined, 8-year-old little girl, but she still has many struggles. She has surgery induced Cerebral Palsy /Hemiplegia, Hemianopsia, Central and Obstructive Apnea, GERD, bowel issues and some learning delays.
We are in need of a reliable vehicle for Roz’s medical trips throughout the year. Our current SUV has over 160,000 miles, a nonworking gas gage, constant engine light on, failing heat, and most of all, it does not allow for Roz to be independent.
Roz goes to therapy weekly which, is a two-hour round trip so that she can get the best therapy for her condition. In addition, we travel at least 3 times a year to Cincinnati Children’s Hospital, which is 3 hours round trip. These trips are just for her routine appointments and don’t include any special appointments or tests.
Roz and our family would love to get a Honda Odyssey van so we can get her safely to her numerous appointments. This van provides safety features such as rear seat viewing cameras so we can keep an eye on her for any signs of distress while we are driving. It also provides room for her medical stroller that comes with us anywhere we go and lastly we can add adaptive handles and steps that allow Roz to get in and out easily and independently.
Chive Charities has helped us keep Roz safe at home by providing us with much-needed medically related equipment and when they asked if there was anything else their community could assist us with, we humbly requested help purchasing this $30,000 vehicle. This van would take away one more worry for us and help us provide comfort, safety, and independence for Roz.
Thank you, everyone, for your generous support of Roz and our family!
Organizer
Anne Abbott
Organizer
Sidney, OH