Rupert journey

I’m raising money for my terminally ill son who is 2years old who’s life is shortened massively due to a extremely rare disease Vinci he is the only known case in England and causes neurological problems  his cells to break down and his Organs to shut down his has a low immune system which means lots of hospital visits currently admitted with suspected sepis but has responded well to treatment we would like to raise them money for him to have a comfy wheelchair buggy which comes with the price tag £5000 the stingray and the rest to go toward a extension to have him own room n bathroom downstairs as he is getting heavy and big carrying up and downstairs he is registered blind and suffers with seizures but can see lights n shadows so we would like to make his room a sensory room full of all the stuff he loves to make his life as happy and comfortable as possible and to be able to enjoy time at home with his brother and sister who love him loads Rupert a very happy smily boy and is so brave he has had to go through so much but carry’s on fighting daily with a smile we want him to have the best life he can keep him comfy as possible and make happy with his brother and sister the can always have to remember any interested to see more about Rupert he has a Facebook page Rupert journey