Salt Air Jam For Cystic Fibrosis
Donation protected
Salt Air Foundation, a 501(c)3 non-profit annually hosts Salt Air Jam, a music festival / fundraiser to raise money to offset medical expenses for people living with Cystic Fibrosis (CF).
100% of net proceeds from concert tickets and donations will go into the charity fund at Salt Air Foundation to be used for patient assistance and research.
Funds are needed immediatey to meet our May 19th Salt Air Jam and May 20th Salt Air Scramble goals.
Here is an example of costs and challenges for a CF patients...My 7 year old grandson, Eli:
Meds:
Orkambi - $20321.55 (New CF drug that reverses CF at cellular level) not a cure
ZenPep - $2639.99 (Enzymes takes with every meal)
Qvar - $254.99 (Asthma/Allergy inhaler)
Ventolin - $71.99 (Asthm inhaler)
Miralax - $48.99 (Constipation)
Azithromycin - $71.99 (Antibiotic Bacteria in lungs forever)
Nexium - $497.99 (Acid Reflux)
Singulair - $132.99 (Asthma)
Pulmozyme - $3349.08 (Salt Air)
Flonase - $41.50 ( Allergies)
Allegra - $27.39 (Allergies)
Multivitamin - $31.86
Pediasure - $150
TOTAL - $27,640.31 per month
RespirTech Airway Clearance System - $15000
Eli takes around 35 pills everday.
(2) 30 minute nebulizer treatments with pulmozyme(salt air) daily
(2) 30 Airway Clearance treatments(Vest Therapy)
He weighs 50lbs but must eat over 2000 calories daily(same as adult)
100% of net proceeds from concert tickets and donations will go into the charity fund at Salt Air Foundation to be used for patient assistance and research.
Funds are needed immediatey to meet our May 19th Salt Air Jam and May 20th Salt Air Scramble goals.
Here is an example of costs and challenges for a CF patients...My 7 year old grandson, Eli:
Meds:
Orkambi - $20321.55 (New CF drug that reverses CF at cellular level) not a cure
ZenPep - $2639.99 (Enzymes takes with every meal)
Qvar - $254.99 (Asthma/Allergy inhaler)
Ventolin - $71.99 (Asthm inhaler)
Miralax - $48.99 (Constipation)
Azithromycin - $71.99 (Antibiotic Bacteria in lungs forever)
Nexium - $497.99 (Acid Reflux)
Singulair - $132.99 (Asthma)
Pulmozyme - $3349.08 (Salt Air)
Flonase - $41.50 ( Allergies)
Allegra - $27.39 (Allergies)
Multivitamin - $31.86
Pediasure - $150
TOTAL - $27,640.31 per month
RespirTech Airway Clearance System - $15000
Eli takes around 35 pills everday.
(2) 30 minute nebulizer treatments with pulmozyme(salt air) daily
(2) 30 Airway Clearance treatments(Vest Therapy)
He weighs 50lbs but must eat over 2000 calories daily(same as adult)
Organizer and beneficiary
Jeff Gilder
Organizer
North Myrtle Beach, SC
Salt Air Foundation
Beneficiary