Smiles for Ava
Donation protected
At 14 hours old, our Ava was admitted in to the NICU. At three months old our little girl is already the bravest person we know and we could not be more proud of her. With in the first couple of days of her being admitted in to the NICU the neurologist was able to identify that she was presenting signs of an extremely rare condition called Moebius Syndrome. This syndrome directly effects her ability to suck, swallow, and to make facial expressions and is in relation to her club feet. This diagnosis was definitely a tough pill to swallow because this diagnosis means we could never see our little girl smile.
With all of that being said, this syndrome will not effect her ability to be an independent adult and follow what ever her heart desires. It will not hinder her ability to completely turn a bad day in to a good one or her ability to completely light up someone's face as they hold her or see her and for that Alex and I could not be more grateful.
Again we appreciate your thoughts and prayers and your generosity as we do what's best for our little girl.
These funds will go directly towards her medical care and a fund for her future Smile Surgery. This surgery will give Ava the opportunity to smile in her own way when she is at the right age. Again we cannot thank our family, friends and community members for all of their support.
Learn more about Moebius here
With all of that being said, this syndrome will not effect her ability to be an independent adult and follow what ever her heart desires. It will not hinder her ability to completely turn a bad day in to a good one or her ability to completely light up someone's face as they hold her or see her and for that Alex and I could not be more grateful.
Again we appreciate your thoughts and prayers and your generosity as we do what's best for our little girl.
These funds will go directly towards her medical care and a fund for her future Smile Surgery. This surgery will give Ava the opportunity to smile in her own way when she is at the right age. Again we cannot thank our family, friends and community members for all of their support.
Learn more about Moebius here
Organizer and beneficiary
Rachel Butler
Organizer
Wichita, KS
Ginger Elsea
Beneficiary