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"DisabledVeteranFamily"in dire need/Lyme/Mcas/Bart

My name is Charles and I am a father of three from Saratoga Springs NY.  I am fundraising to gain access to ongoing treatment for chronic Lyme Disease and MCAS, as unfortunately this treatment isn’t covered by insurance, and after more than 10 years my family  is still struggling to get better


MCAS/LYME Sufferers Please I know you are in the same boat I am in boke and feeling hopeless.  Please use updates and comments with links and literature. The more people know the more they will consider helping us.


Over 1000 views if half posted or helped with even $5 I could have my son at a Lyme doctor within 2 months.  I am straight out begging for your help.  Two peoples lives are at stake one is close to terminal and the other in constant agony.  As a Father, as a Man, and as a Disabled vet I am pleading for your help.  I may not be the best at setting up these pages but we are real.  We are broke and two lives lie in the balance.  I want to go back to work but I don't know if I can hide the pain enough to not get caught.  My last job was project management in communications I rewired and set up complete systems top to bottom.  I have a degree in network administration and I am force to live on disability because of my service connected disability.  I am a proud man and it tares me apart to ask for your help.  I know there is a lot of deserving families out there but please keep mine in consideration. I feel like I need to apologize for asking but I have no choice we are already discussing selling our trailer and paying off the cards so we have more room for meds and other equipment not covered by insurance.  Been trying to keep my son defocused sending him to the detest dermatologist will even try infectious disease next just to keep his hopes up. But again he needs a specialists and they of course are uncovered by insurance and $800 a pop not including supplements.  I can go on and on but this pandemic is being caused by Lyme and if you don't know what it is its a topic you may want to look up before this happens to your family.   I am nobody special but my family is and I pray there's a few special people out there that are willing to help me. 


You don't know me nor do you know my family. I am no one special I grew up poor and made many mistakes along the way.  I have been around the world in service to my country and have seen many worse off then we are.  As a father I have to try to find help. I don't know if anyone knows what Lyme/Bartonella/MCAS even is or how bad it has gotten.  Those that have heard have the same problems and are already broke from there own doctor bills.  I sit here from morning to night watching helplessly.  This GoFundMe is real and I need your help and I know that's a lot to ask of complete strangers but I have to.  My son needs special doctors and I live on a very thin income being a disabled vet at a young age I put out more money then I have.  Please help me save my family.


      I am a disabled vet with a crushed deteriorated spine and major neuropathy. I spent 4 years in Sarajevo and had my back compressed by an 750lb APU Blackhawk engine.  My pain is intense but there is nothing I can do about it.  Mine is a typical broken vet story but if you are willing to help I want you to know I am putting every penny I can into helping my child, my fiancé as well as her daughter Kayla.  I can't do it alone please if you can help please do.  The amount of people this reaches out to the more people may be able to help so "please post this".  Every $5  makes a difference, and every re post gets us out there.  

     
      We are a god fearing family overwhelmed by suffering. I am reaching out for help in the hopes to save there lives.  There names are Doreena 42, Nicholas 20, and Kayla 18. I also have two other children 18 and 8.

     Doreena has mast cell activation syndrome, Lyme, back pain, insomnia, headaches, dizziness, Bartonella, Babesia, Anxiety, chronic fatigue, factor 5 laden, HHV6, chronic migraines  etc.  She can no longer leave the house and can only eat twice a day while medicated. 

     Doreena has been in treatment for over 10 years and has lost everything, her home, her husband, her savings, and nearing her life.  We are currently over $35,000 in debt, can no longer afford acupuncture, Lymphatic Massage, therapy, Lyme or Mcas Doctor.  She can't eat or drink without Lorazepam and her resistance builds up to it more and more everyday.  She has been debilitated for over 5 years.  The Lyme has activated what is called MCAS or Mast Cell, this is what closes her throat when she takes meds, food, or even water.  She is allergic to most foods and medications. 
  
 


Kayla  Lyme, Bartonella,  chronic fatigue,  Anxiety, HHV6, Moody, Nausea, Scars. 


Nick Lyme,IBS, chronic neck and back pain, insomnia, headaches, dizziness, Bartonella, Anxiety, Hallucinations, chronic fatigue. it affected his entire body, from his brain to his skin, heart, extreme body pain, eyes, shaking, numbness, tingling, kidneys, liver, burning neuropathy, balance issues, weakness in his legs and arms, burning scars all over his body, cold sweets and everything else that you can imagine. He was misdiagnosed for over half of his life and has suffered dearly for it. 

My son Nick has been told by Drs. for at least 10 years that the marks on his body where stretch marks or they had no clue.  His fatigue was attributed to laziness.  His pain was written off as growth.  His breakdowns and Anxiety where a behavioral problem. He was and is a good person and son and the system failed him.  Nick was diagnosed With Lyme and Bartonella in 2016. Nick has time and can still be helped and in time hopefully recover from all of this and put his Lyme in remission.  His Bartonella is spreading drastically, he has run through the Doxi, and Lavoxin  and  an LLMD as well.  Again.
To help you to understand my son from a fathers view is his anxiety is of the charts he cant sleep because his night sweats are bad.  The marks on his body are everywhere and burn him.  We know its from bartonella but I can't afford the doctors to help him anymore and no doctors take Insurance for it.  He has been without a doctor for over a year now. We tried the dermatologist but it was useless, his Primary did the best he could.  I spent $3000 on a specialist but I couldn't afford to send him anymore.  We are trying to figure out our next step it has not been a easy to see my son suffer but my hands are tied as a disabled vet the money is tight. 






We are desperate, as we are now over $35k in debt and are still fighting this battle.  My heart breaks knowing that our country has turned its back on those suffering from this terminal chronic disease.  We just finished as a part of a Lyme documentary and when its complete I will put a link on here.  I consider myself a man of honor and thought at one point the horrors I have seen around the world where the worst things I thought I would ever witness.  But to watch the woman I love slowly dying before my very eyes and knowing my sons fate will be the same is a suffering I would wish on no one.   

God Bless and Thank You

My facebook if you want to get to know me. 
https://www.facebook.com/profile.php?id=100011767609266

My E-mail is [email redacted] 

My Phone number [phone redacted]



     I have sat in this chair for the past 3 years watching my fiancé dying before my eyes. My heart breaks every time I see her going thru her tremors as she chokes on her food and water trying to keep it down. My son paces up and down the hall most of the time in a fog. Please we need your help we are out of money and can't afford to pay the credit cards we are using to help them. I can't send my son to anymore doctors all of our money goes to bills and doctors. I go to the 5 food banks in our area just to feed my family. I had to stop paying on my credit cards 6 months ago so we can afford our rent. I am a 100% disabled vet and the VA only pays for 40%. My SSDI only pays $1100 a month and the VA only pays $550. I am just being honest, we are hurting. Last year alone I spent $4000 on doctors for my son. This year alone we are over $7000 for Doreena's doctor fees and that doesn't include all the meds we had to have compounded to stop the Mcas from killing her. I love this woman like no other, she saved my life. I had given up hope before she came into my life. I can't be fixed but I am not giving up on her or the kids.

Organizer

Charles H Clark
Organizer
Saratoga Springs, NY

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