Help Zamoras mom /zamora has passed
Donation protected
Please lend support to Zamora Moon in her fight against Pediatric Brainstem Glioma. DIPG. Brain cancer!
Our perfect, silly, and lovely, Zamora Moon was diagnosed with pediatric brainstem glioma on July 15th , 2015. This cancer is agressive, so our battle has been hard. "Diffuse Intrinsic Pontine Glioma", is a rare and aggressive brain cancer that affects the central nervous system. The diagnosis was sudden and the prognosis is terminal, there is a 0% surival rate.
SHE HAS BEEN FIGHTING THIS CANCER FOR TWO YEARS NOW!! THEY GAVE HER 1 MONTH TO 9 MONTHS MAXIMUM TO LIVE. WE DID IT!!!!!!!
The update on this journey since July 2015:
We are reseting our goal back to Zero because we have spent her funds for this year and last. We have traveled to Germany to get immunotherapy five times this year, went to Bristol England to place a CED catherder in her brain to put chemo directly on the brain inoperable brain tumor, spend three months in Europe, and flying back to USA to get immunotherapy, and now flying back to London to get chemo again via CED to her brain tumor. She has to go back every 4 weeks and stay a week in London. This will potentially save her life and she is a pioneer for other children with DIPG. The estimated costs will be $15,000 a month with airplane tickets, accomadations, and hospital bills which are not covered by our insurance. This is ONLY done in England at the Harley Hospital for Children. in London.
We have been in London now for 6 months, and we are now set to travel to perhaps Mexico Monterrrey to receive treatment there.
So after some set-backs earlier this year, we think Zamora’s situation has stabilized enough that she is able to travel.
Typically with cancer, the survival chances are good when it can surgically been cut out. Chemotherapy works somewhat, but when surgery is not an option, like with Leukemia, Chemotherapy can bring up the survival chances up to about 80%.
Unfortunately for Zamora and all the kids afflicted with DIPG, surgery is not an option due to the location of the tumor and its diffuse nature.
Chemotherapy is not an option either as the drug are filtered out by the Blood-brain-barrier that protects our brain from harmful pollutent. That lives us to the unproven, avant-garde therapies like Viro-therapy and immunotherapy. We did that for Zamora, taking her to Germany 5 times to receive treatment at IOZK and it helped keeps her all these months. However, with the pioneering CED surgery she had in Bristol in the Spring to place a port directly into her tumor, we opened up for her a new delivery channel. Now she is finally able to receive Chemotherapy in a way that can make a difference.
She reacted very badly to the first drug we tried in May. But she has now recovered and we are in London trying a different drug.
This time, it looks like she is supporting it well and we are hopeful that it will make a difference.
Unfortunately, accessing her brain-port can only be done in London and we’ll have to be back for new infusion on a monthly basis. This means new expenses to pay for the flights, the living in London while there and the treatment itself. Overall, this will drive monthly expenses of about $15,000. These cost will be monthly.
We appreciate your love, friendship, strength, and support as we face the challenges ahead. Please help us help her live..no donation is too small.
Please if you can spread this around on your Facebook or email to your friends. I am in complete gratitude and humbled by everyones attempt to save our daughter. Much love to everyone..from the sea from the air from the love that warms the earth...
Check out Zamora's links she learn about her journey and treatment she is getting and other info.
Newest article is here:
https://www.almanacnews.com/morguepdf/2017/2017_03_01.alm.section1.pdf
https://www.facebook.com/ZamoraMoon/
http://www.almanacnews.com/news/2016/03/11/mother-fights-to-save-daughter-with-brain-cancer
http://www.iozk.de/en/info/contact
http://www.ktvu.com/news/24371799-story
Our perfect, silly, and lovely, Zamora Moon was diagnosed with pediatric brainstem glioma on July 15th , 2015. This cancer is agressive, so our battle has been hard. "Diffuse Intrinsic Pontine Glioma", is a rare and aggressive brain cancer that affects the central nervous system. The diagnosis was sudden and the prognosis is terminal, there is a 0% surival rate.
SHE HAS BEEN FIGHTING THIS CANCER FOR TWO YEARS NOW!! THEY GAVE HER 1 MONTH TO 9 MONTHS MAXIMUM TO LIVE. WE DID IT!!!!!!!
The update on this journey since July 2015:
We are reseting our goal back to Zero because we have spent her funds for this year and last. We have traveled to Germany to get immunotherapy five times this year, went to Bristol England to place a CED catherder in her brain to put chemo directly on the brain inoperable brain tumor, spend three months in Europe, and flying back to USA to get immunotherapy, and now flying back to London to get chemo again via CED to her brain tumor. She has to go back every 4 weeks and stay a week in London. This will potentially save her life and she is a pioneer for other children with DIPG. The estimated costs will be $15,000 a month with airplane tickets, accomadations, and hospital bills which are not covered by our insurance. This is ONLY done in England at the Harley Hospital for Children. in London.
We have been in London now for 6 months, and we are now set to travel to perhaps Mexico Monterrrey to receive treatment there.
So after some set-backs earlier this year, we think Zamora’s situation has stabilized enough that she is able to travel.
Typically with cancer, the survival chances are good when it can surgically been cut out. Chemotherapy works somewhat, but when surgery is not an option, like with Leukemia, Chemotherapy can bring up the survival chances up to about 80%.
Unfortunately for Zamora and all the kids afflicted with DIPG, surgery is not an option due to the location of the tumor and its diffuse nature.
Chemotherapy is not an option either as the drug are filtered out by the Blood-brain-barrier that protects our brain from harmful pollutent. That lives us to the unproven, avant-garde therapies like Viro-therapy and immunotherapy. We did that for Zamora, taking her to Germany 5 times to receive treatment at IOZK and it helped keeps her all these months. However, with the pioneering CED surgery she had in Bristol in the Spring to place a port directly into her tumor, we opened up for her a new delivery channel. Now she is finally able to receive Chemotherapy in a way that can make a difference.
She reacted very badly to the first drug we tried in May. But she has now recovered and we are in London trying a different drug.
This time, it looks like she is supporting it well and we are hopeful that it will make a difference.
Unfortunately, accessing her brain-port can only be done in London and we’ll have to be back for new infusion on a monthly basis. This means new expenses to pay for the flights, the living in London while there and the treatment itself. Overall, this will drive monthly expenses of about $15,000. These cost will be monthly.
We appreciate your love, friendship, strength, and support as we face the challenges ahead. Please help us help her live..no donation is too small.
Please if you can spread this around on your Facebook or email to your friends. I am in complete gratitude and humbled by everyones attempt to save our daughter. Much love to everyone..from the sea from the air from the love that warms the earth...
Check out Zamora's links she learn about her journey and treatment she is getting and other info.
Newest article is here:
https://www.almanacnews.com/morguepdf/2017/2017_03_01.alm.section1.pdf
https://www.facebook.com/ZamoraMoon/
http://www.almanacnews.com/news/2016/03/11/mother-fights-to-save-daughter-with-brain-cancer
http://www.iozk.de/en/info/contact
http://www.ktvu.com/news/24371799-story
Organizer
Marisa Martinez
Organizer
Redwood City, CA