Endometriosis Foundation Of America (Endometriosis Foundation of America (EndoFound))

The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert s...Learn more

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Kelly G is fundraising
Kelly's 13.1 Miles for Endometriosis Awareness
Hi friends,

I was diagnosed with endometriosis when I was 21. Now, 10 years later, I reflect on how much this journey has shaped my life. Iam lucky. Most women with endometriosis spend 10 years just trying to get a diagnosis. That’s 10 years of pain, confusion, and unanswered questions.

Managing my endometriosis feels like a part-time job. It requires research, carefully planned meals, tracking symptoms, and finding the right professionals to guide me. It’s a relentless cycle, and for 1 in 10 women this is their reality. From fatigue and cramping to infertility and countless other symptoms, endometriosis is a constant companion that demands your attention.

I am lucky. I have the time and resources to focus on my health.

I am lucky. Most days, I can get out of bed and tackle what needs to be done.

I am lucky. I have a supportive husband and family who lift me up on the hard days.

Right now, there’s no cure for endometriosis. Treatments are limited, awareness is lacking, and for many, the condition feels invisible. I feel like somedays, I'm just Kelly. But other days, I become my condition and cannot see anything beyond it. Endometriosis has gone on too long with too little answers. It effects too many people to have too little treatments. It is too painful to be too overlooked.

I’m not a runner by nature. I don't know what compelled me last year to have "run my first 1/2 marathon" as a year goal. It took a lot of encouragement, a killer playlist, and some well-timed snacks to get me across that finish line. But I’ll never forget the pride I felt—not just for running 13.1 miles, but for overcoming the obstacles my condition constantly throws at me.

This year, I’m running again—not just for myself, but for every woman fighting this battle. For the Endo Warriors who push through the pain. My goal is to raise $1,000 to support endometriosis research and shed light on this often-overlooked condition. And I’d love for you to join me in this journey. The run will be on March 29th, but you can participate however it works for you - just complete 13.1 miles by that date. Take 3 days to complete it - or 3 weeks! Run, walk, or jog at your own pace, wherever you are. Together, we can make a difference and bring hope to those living with endometriosis.

Thank you for supporting me, this cause, and all the Endo Warriors out there.

With love,

Kelly
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13 supporters
Brianna Adams is fundraising
Support Brianna's Endometriosis Awareness Drive

Hello! My name is Brianna, and I'm passionate about raising awareness and support for endometriosis, a condition that affects 1 in 10 women, yet often goes undiagnosed or misunderstood.

I am organizing a holiday gift-wrapping station at local events, where donations will go directly to the Endometriosis Foundation of America to fund research, advocacy, and patient support. Every contribution, big or small, will help bring us closer to better treatments, earlier diagnoses, and improved quality of life for those battling this challenging condition.

Thank you for joining me in making a difference!
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5 supporters
sophia silva is fundraising
Help EndoFound and EndoBloom Empower Endometriosis Patients
Want to join me in making a difference? I'm raising money to benefit Endometriosis Foundation Of America (Endometriosis Foundation of America (EndoFound)), and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me as someone who has struggled with Endometriosis since 13.

More information about Endometriosis Foundation Of America (Endometriosis Foundation of America (EndoFound)): The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
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1 supporter
Natacha Océane is fundraising
Raising $40,000 for Endometriosis Research!
Endometriosis affects an estimated 200 million women around the world and we barely understand it. It can lead to infertility, debilitating pain, internal bleeding and psychological distress, and a diagnosis takes 8 years on average! I'm going to run my first 100 mile race to support research into endometriosis so we can get closer to understanding and treating this life-changing disease.

YouTube Fundraisers don't support donations made from all countries (sorry, I didn't realise!) so anyone from unsupported countries like Australia and Denmark can help us advance the research into female health.

We're already so close to $40,000 (>$29,000 on YouTube so far!) so your help in these final steps means the world!!

Here's what EndoFound say the money contributes towards: "With every gift, YOU advance cutting-edge endometriosis research, educate adolescents, advocate for endometriosis legislation, and promote widespread disease recognition and awareness."

All funds donated here and on YouTube go directly to EndoFound (:

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192 supporters
Alex Bernicker is fundraising
Running NYC Marathon to raise money for EndoFound
Hey everyone!! I’ll be running the New York City Marathon on November 5th, 2023 to help raise money to benefit the Endometriosis Foundation Of America (EndoFound). My goal is to raise $4000 dollars this year, and I’d appreciate any size donation you can make as I continue my training & get closer to race day! A big thanks in advance to those who can contribute, I’m really excited to be running for a great cause & I’ll see those who can make it at the finish line!

More information about Endometriosis Foundation Of America: The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
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17 supporters
Nicole Notar is fundraising
Running Strong for Endo Warriors
I'm participating in the Little Silver 5K and fundraising for the Endometriosis Foundation of America, and I'd like to share my journey with you. Throughout my life, I've had a love for running and all sports; however, finishing races, or anything for that matter, was constantly thwarted by the excruciating pain of endometriosis. Even the treadmill or walking short distances became my enemy.

In May of 2023, I underwent a life-changing excision surgery performed by the skilled Dr. Tamer Seckin. This surgery transformed my life in ways I could have never imagined. Living with endometriosis can be an incredibly isolating experience. It often involves enduring years of medical gaslighting and judgment from others due to the invisible nature of the disease, often leading to a delayed diagnosis, which averages a staggering 10 years.

I am immensely grateful for the care and unwavering support that the Endometriosis Foundation of America has provided me during my journey. Now, it's my turn to give back and make a difference. I'm reaching out to you, my friends, family, and compassionate individuals, to join me in supporting the Endometriosis Foundation of America, founded by the remarkable Dr. Tamer Seckin. Together, we can make a real impact in the lives of those affected by endometriosis and raise awareness about this under-researched and often misunderstood chronic pain disease. Your contribution will help pave the way for a brighter, pain-free future for countless women like me. Thank you for your generosity and support!

-Nicole :)
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25 supporters
Michelle Ng is fundraising
NYC Marathon 2022 for Endometriosis (EndoStrong)
I have been battling endometriosis and fibroids for a long time — almost 20 years to be exact. This year, I’ve decided to make it my mission to raise awareness for these debilitating disorders in every way possible. And I’ve pledged to run as part of Team EndoStrong at 2022 TCS New York City Marathon on Nov 6th to raise awareness for endometriosis and to raise at least $3000 for The Endometriosis Foundation of America. For everyone who donates, I’ll give a shout-out on my FB in the weekly #MarathonMonday updates and print your names on a T-shirt that I’ll race in :)

What is endometriosis?

Endometriosis affects 1 in 10 women, and it causes awful pain, heavy periods, bowel and bladder issues, infertility, internal organs fuse together, etc. Yet, in 2020 according to National Institutes of Health (NIH), endometriosis is one of the least funded, ranking at number 276 out of 288, with less than $1 per patient. It takes women an average of 10 years to get a diagnosis, and even longer for proper treatments. There’s currently no cure.

What is The Endometriosis Foundation of America?

The Endometriosis Foundation of America (EndoFound) is a non-profit organization founded by Padma Lakshmi that strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. They have done a lot of work to advocate for more governmental support in order to increase endometriosis funding in the US. You can read more on their website here.

My story

For those who don't know me, my name is Michelle. I was born and raised in Hong Kong, and moved to the States with my family during teenage years. I studied Computer Science at Boston College, and then came to New York to work as a software engineer at Goldman Sachs. After spending time at R/GA working on Nike+ and getting diagnosed with thyroid cancer, I decided to change my career to doing something I love more, which is design. I've since worked as a designer for big brands such as The New York Times, non-profits, and startups. I'm now building my own startup called Neuemoon Health hoping to help teenage girls and women who suffer from debilitating gynecological disorders.

I've had awful periods since my college days, experiencing tremendous amount of pain that would lead me taking max dose of ibuprofen a day just to function, and losing so much blood that causes chronic anemia. My periods would always make me miss work few days a month and prevent me from social gatherings.

It is very hard to find doctors who are knowledgable about endometriosis. For me, I had known about mine since in my 20s, with ultrasounds showing endometriomas, but doctors would only prescribe birth control pills and said nothing can be done. Fast forward 15 years later, my symptoms have progressed so much worse that my daily life is affected. Some days are better than others, but it has stopped me from running and exercising because of the pain on my left pelvic area, lower back pain, sciatica pain that goes down my left leg, extreme fatigue, etc. These symptoms are still persisting after my open myomectomy surgery last year to remove 19 out of 30 fibroids. In March, the doctors finally saw on the MRI that I actually have the most advanced type of endometriosis — deeply infiltrative endometriosis (DIE).

I've just undergone robotic surgery for endometriosis in the middle of June, where they did 5 incisions 8mm each and found extensive adhesions left and right ovary stuck with the uterus, uterus stuck to the abdominal wall, with the bowel, etc. The recovery will be a few weeks. After recovery, I'll continue to train for the marathon. I guess this is a challenge for me both physically and mentally — to prove to myself that this disease won't stop me.

In this campaign, every penny you donate will go to EndoFound for endometriosis awareness and research. Please support in any way you can — donate, learn more about the disease, pay attention to your loved ones to make sure they don't have undiagnosed gynecological disorders, and make them feel supported if they do have them, or if you yourself have endometriosis, make sure to take good care of yourself.

Thank you!

FYI, I've also set up a Bonfire shop where all the proceeds from the t-shirt designs will go towards this fundraising:
https://www.bonfire.com/store/himichelleng/

Best,

Michelle
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30 supporters
Michael Collins is fundraising
One Run to Support Daily Battles
Warrior : a person who fights in battles and is known for having courage and skill

Endometriosis: an often painful disorder in which tissue similar to the tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus.

Endo Warrior: The 1 in 10 women who fight this chronic illness, with often debilitating pain, while living in a world that cannot see or often understand their daily battles.

So please join me in raising money to help support these Endo Warriors. I will be running a 1/2 marathon on 2/27 in honor of one of these warriors, my cousin Meg, whose resilience through her battles is truly inspiring. Any little bit helps and I appreciate your support.

In addition, please see her Etsy shop where all profits go to a program to ensure all school nurses are equipped to spot the early signs of the disease. Early diagnosis and education is one of the best ways to help those who suffer.

@endomego
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42 supporters
Lisa Drayton is fundraising
Lisa's "End Endo" Campaign!
If you attempt to donate and your browser either "does nothing" or "freezes," try switching to Internet Explorer. I've been advised by Tech Support that sometimes browers...get feisty...

WHAT IS ENDOMETRIOSIS?

As many of you know, I was diagnosed with Stage IV Endometriosis on June 30, 2014, after undergoing a routine surgery to remove cysts from my ovaries and was diagnosed with Endometriosis. I underwent a second surgery in September 2016, as well as July 2018, and November 2018.

What is Endometriosis? It’s an incurable condition that causes infertility, chronic inflammation, internal bleeding , internal scarring, and a lot of pain. It affects over 176 million women and girls worldwide, 8.5 million in North America alone (stats from Endometriosis Foundation of America). There is no cure. More information (and the science-y stuff) can be found here .

Bloomin' Uterus buttons are here! If you'd like, a $2 donation secures you a button! If you'd like more than one, it's just an additional $2 per button! All monies raised are immediately donated to the Endometriosis Foundation of America (EFA), a non-profit organization which raises awareness and research funds. I'll email you asking for your mailing address after you purchase one!

This donation page is for anyone wanting to support ANY one of our walkers for the 2018 Endo Awareness & Support Walk. If you're donating, please feel free to list in the "comments" section who you're donating on behalf of. :)

Our walk is on March 28, 2020. If you'd like to join us, please contact me for more information.

What's this Bloomin' Uterus business?!? My nurse once described Endometriosis like crabgrass...it just lives there and grows and grows and grows, despite how much you cut it out. So I felt disgusting and gross on the inside...until I created the Bloomin' Uterus! A fun coping mechanism, and spreading Endometriosis Awareness along the way.

March is the Endometriosis Awareness Month. It’s a worldwide march to raise money in support of Endometriosis awareness and fund research efforts to find a cure. This walk is not affiliated with any organization or other event; this is purely friends coming together to raise money, awareness, and show support.

In 2019, our walk had 275 attendees (OH MY GOSH!) and we raised $1,771.65 for the Endometriosis Foundation of America.

In 2018, we raised $1,317.90 for the Endometriosis Foundation of America and had 120 walkers!

Our 2017 walk raised $1,857.42. Of that $76.67 was from t-shirt sales, $115.75 was from the San Diego Sisters of Perpetual Indulgence fundraisers, $250 was from the Element Wellness Center fundraiser, and $1,415 was from Gofundme donations! Also, one of our walkers, Allison, raised an additional $135 for the E.F.A. with her own gofundme fundraiser! Thank you EVERYONE! Rather than start a new fundraiser page for 2018, we simply increased the goal of this by $1,200.

Our 2016 walk raised $1,966.00 (gofundme.com), $28.00 (goodsearch.com), and $43.35 from t-shirt sales (teespring.com), totaling $2,037.35 for the Endometriosis Foundation of America! Rather than start a new fundraiser page for 2017, we simply increased the goal of this one to $5,000.

Our 2015 walk raised $1,765 (gofundme.com), $16.81 (goodsearch.com), and $70.96 (teespring.com), totaling $1,852.77!

MY STORY

My name is Lisa. I'm a typical happy-go-lucky, crazy, young woman. More about me and my journey with Endometriosis can be found at http://bloominuterus.com/2015/02/27/share-your-story-lisa/ .
I had NO idea I had it. My Endometriosis flares up during my monthly cycles: unbearable pain which knocks me out of commission for a day or two. I had NO idea my pain, bloating, and cramps were abnormal. I’d been told by countless friends, family, and physicians that it was normal. “Take Midol,” they said. “Use a heating pad,” they said. “Take this prescription pain killer,” they said. “You’re exaggerating…,” they said, and “You’ve got a low pain tolerance.” So, I listened. I accepted that I was one of those unlucky women to have severe pain during my cycles, while other women had none. I took my pain killers, and endured those side effects as well.

When my surgeon opened me up for my cystectomy, he was surprised to see Endometriosis implants in my pelvic cavity and abdomen. Each implant had to be removed, causing my 1.5 hour surgery to last over 4 hours. Some implants were as far north in my abdomen as my liver and diaphragm. There were also several adhesions (scarring) from Endometriosis, which had knit my organs together. My left ovary was obliterated by scar tissue, but he was able to free and save it. My bladder and bowel were connected to my uterus by the adhesions, which look like spider webs binding the tissues together. The organs had to be carefully separated and the scarring removed. My surgeon also removed the scarring from several other areas of the body, and was unable to remove the adhesions from my liver. Recovery was horribly painful, but is already almost forgotten…

I've since had subsequent surgeries: one in 2016, one in July of 2018, and another in November of 2018 .

The most depressing thing I learned since my surgery? The implants and adhesions will likely come back. I lasted 2 years between each of my surgeries. Hoping I last longer this next time around. And there is no cure.

And I am so grateful for the love and support of my family and friends. You guys have been amazing during this time. You know who you are. And I love you all deeply.

OTHER WAYS TO HELP

Ebay Giving Works allows you to list items on ebay for sale, and a portion of the sale goes directly to the Endometriosis Foundation of America (or any charity of your choosing). Ebay Giving Works

Bravelets is a small jewelry company that sells bracelets in support of many difference causes. Endometriosis is just one of the. The donate $10 of every purchase to the Endometriosis Foundation of America. They also have several different causes and foundations they donate to, if any of them appeal to you. Bravelets

Goodsearch is a web browser that donates one penny to the Endometriosis Foundation of America (or whatever charity you choose) every time you search the internet. GoodSearch
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105 supporters
BLOOM Organization is fundraising
BLOOM With Us: Support EndoFound!
Our HOSA community awareness campaign for endometriosis is dedicated to raising funds to increase awareness and support for individuals affected by this often misunderstood condition. Endometriosis impacts millions of people worldwide, causing significant pain, infertility, and a host of other medical complications, yet it remains underfunded and under-researched. By raising funds, our campaign seeks to support the Endometriosis Foundation of America (EndoFound), a leading organization in endometriosis research, advocacy, and patient support. Every dollar raised will make a difference, as it contributes to groundbreaking research, educational programs, and resources that empower patients and educate the public. Each contribution not only fuels advancements toward effective treatments but also helps to break the stigma surrounding the disease, promote early diagnosis, and improve healthcare options. Our goal is to shed light on this invisible illness and drive forward meaningful change in endometriosis awareness and care.

Every dollar counts!!
0 supporters

About Endometriosis Foundation Of America (Endometriosis Foundation of America (EndoFound))

The Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

Find Endometriosis Foundation Of America (Endometriosis Foundation of America (EndoFound)) at

Causes

Obstetrics and gynecology, Reproductive health care, Diseases and conditions, Philanthropy, Public affairs

Established

2007

Tax ID

20-4904437

NTEE code

Diseases of Specific Organs

Endometriosis Foundation Of America (Endometriosis Foundation of America (EndoFound)) is a 501(c)(3) public charity, EIN 20-4904437. Donations are tax-deductible. Select content is provided by GuideStar.

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Endometriosis Foundation Of America (Endometriosis Foundation of America (EndoFound))

Kelly's 13.1 Miles for Endometriosis Awareness

Support Brianna's Endometriosis Awareness Drive

Help EndoFound and EndoBloom Empower Endometriosis Patients

Raising $40,000 for Endometriosis Research!

Running NYC Marathon to raise money for EndoFound

Running Strong for Endo Warriors

NYC Marathon 2022 for Endometriosis (EndoStrong)

One Run to Support Daily Battles

Lisa's "End Endo" Campaign!

BLOOM With Us: Support EndoFound!