The PolG Foundation Inc.

We have one wish this Christmas: that our friend's daughter Emilia can leave the hospital and receive the care she needs at home with her family. Emilia and her sister live with PolG, a rare and devastating disease that drains energy from the cells, affecting every organ in their bodies. While many teenagers and young adults are preparing for exams and planning their futures, Emilia and her sister are engaged in a daily battle just to survive.

Today there is no cure for POLG and support is needed for research, so please consider making a donation to bring the POLG research forward. Every contribution makes a difference! Follow the link to meet Emilia and Amelie and other children with PolG: https://polgfoundation.org/

Frederik is 21, he’s terribly creative, funny, and above all an incredible human being.

Frederik was diagnosed with a PolG mitochondrial disease at 14 years old, and I’ve seen him fight fiercely against it ever since. Some of the daily challenges that Frederik must face include his ability to walk, eat and see.

On August 20, I’ll be participating in my first Iron Man. That is, I’ll be swimming 2.4 miles, cycling 112 miles, and running a full 26.2 mile marathon.

Please support me by donating to The PolG Foundation. The mission of The PolG Foundation is to support and accelerate research to find effective treatments and a cure for PolG mitochondrial disorders.

Check out @polgfoundation and please help us raise funds and awareness.

Any contribution takes us a step closer to cure #polg.

Thanks,

Ben