
Make Griffin's Wish to Hug Mickey at Disney Come True!
Donation protected
Griffin brings light and laughter to any room he is in. Everywhere we go he makes friends and ends conversations with, "Ok, we're friends now." He loves fishing with his Papa and his dad is his best buddy. Griffin has the most vibrant and goofy personality of any 4 and a half year old I know.
This past Summer we got the devastating news that Griffin has the second rarest muscular dystrophy, LMNA-related congenital muscular dystrophy (try saying that 3 times fast haha). This particular muscular dystrophy is so rare that there's no real time line for when and how he will be affected by this disease. Right now he gets tired more easily than kids his age, has a hard time with stairs, isn't exactly a runner, and walks a little goofy.
Griffin's biggest wish is to go to Disneyland to hug Mickey and build sand castles at the beach. We found out the other day that Make A Wish rejected his referral, due to Griff's heart being healthy.We really want to be able to fulfill his wish, but with Disney recently raising their ticket prices and Griffin not qualifying for their disability program, it's going to be a lot more expensive to skip the long lines (that could potentially trigger his Cyclic Vomiting Syndrome). We love our boy so much and we want to be able to have these memories as a family. If you'd like to help make Griffin's dream come true, we'd be forever grateful.
Organiser
Alicia M
Organiser
Middleton, ID