Liv4theCure
Fiscaal aftrekbaar
At 5 months old, our daughter Oliva was diagnosed with Wolf Hirschhorn Syndrome (WHS), a rare genetic condition where part of the fourth chromosome is deleted.
This is her story.
We’re telling it with hopes of spreading awareness and helping to promote positive change in the rare disease community.
Funding to start research sits at $250,000. That is Liv4TheCure’s goal. For more about Olivia’s story, or how you can help, visit our website: www.liv4thecure.org/
It is our mission to advance the science and technology of rare chromosomal-deletion syndromes with the hopes of helping kids like Olivia, their families, and all who are affected by rare diseases.
This is her story.
We’re telling it with hopes of spreading awareness and helping to promote positive change in the rare disease community.
Funding to start research sits at $250,000. That is Liv4TheCure’s goal. For more about Olivia’s story, or how you can help, visit our website: www.liv4thecure.org/
It is our mission to advance the science and technology of rare chromosomal-deletion syndromes with the hopes of helping kids like Olivia, their families, and all who are affected by rare diseases.
Organisator
Stephanie Forman
Organisator
Latham, NY
Liv4TheCure
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